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My name is Alexa Griffin, I am 22 years old and live in Montana. I battle a very rare blood disease called A Typical Hemolytic Uremic Syndrome. (aHUS) only affects 2 in a million people in the US…I’ve been on dialysis for the last year waiting for a kidney transplant. On October 27th, 2022 I received a phone call from my transplant team, telling me to get to Spokane asap for cross matching lab work to find out if this deceased donor kidney was a match with me or not. I packed whatever I could and drove straight to Sacred Heart in WA. Around 10 pm that night, I was approved for the kidney transplant. I was then at the hospital at 8am the next morning for a major life changing surgery. What I didn’t know then, was how difficult this journey would be. A month after my transplant, I had a biopsy done on my new kidney because my lab work wasn’t looking as well as they had hoped. The biopsy results came back poorly. My transplant team had to send all my results to the Mayo Clinic for further research. I then got an emergency dialysis catheter placed in my chest to start treatment for rejection. I’m doing plasmapheresis every other day for 6 treatments and then I’ll get another kidney biopsy to see if this treatment is helping or not. That will tell us if I’m having a rare rejection or if my body is fighting itself. I’m at risk of losing this new kidney and living the rest of my life on dialysis. Or worse.. Please please please pray for me. I have bills piling up back home and I’m scared of losing my apartment and everything I own while trying to fight for my life.
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