Thank you everybody. Our campaign is now over.
Help Terry Smile With #EhlersDanlos #ChronicPain #TetheredCordSyndrome #EDS
$2,350 pledged
107% of $2.2k goal
25 contributors
0 days left
Ended Aug 10, 2020

I want to live an active and engaged life. Hypermobile Ehlers-Danlos Syndrome (EDS) has made this difficult. At first, my illness was invisible, and my smile masked my pain. Throughout my early years, I rode horses competitively, ran marathons, and spent weeks backpacking in the wilderness. Then my illness set in, and I have pushed through ever-increasing chronic pain every single day for the past fifteen years. All of the 360 joints in my body are affected, from my jaw to my toes.  There is no cure for EDS, and it is a progressive disease. My many surgeries and countless treatments cannot make my collagen “normal”. Recent stem cell injections into my cervical spine have been a last-ditch attempt to avoid a neck fusion surgery. I have had to stop doing things I loved due to severe joint pain, muscle weakness, and nerve dysfunction. My former vitality has been overcome by exhaustion.

At the peak of the Coronavirus pandemic, I had emergency spinal cord surgery to treat occult tethered cord, a serious neurological defect related to my faulty collagen. Prior to surgery, my feet felt like I was walking on broken glass, and they burned as if in hot sand. My leg muscles are painful, atrophied, and contracted. Since my surgery, I have been house-bound, and often bed-bound. It is unknown how much function I might regain as I heal, but I am quite limited now. Ongoing physical therapy has been key to managing my illness, but my difficulty with ambulation - due to the surgery, and also to ankle, knee, and hip subluxations - has blocked any meaningful progress.

I learned about the Alinker walking bike last year and I immediately recognized that it could be of tremendous benefit to my physical, emotional, and spiritual health. What a gift it would be if an Alinker walking bike could help me get out to attend family gatherings, visit my neighbors, and cheer for my husband at his baseball games! I would feel very grateful to participate in small but meaningful ways such as these. My smile is brighter when it is shared with others.

This mobility aid symbolizes freedom, strength and community. An Alinker could help my muscles, nerves, and joints relearn how to walk without the risk of injury. Having the option to self-propel on days I am able - rather than be pushed in a wheelchair or ride in a power chair - would feel empowering. While the list of things I cannot do grows longer each year, my spirit remains hopeful. I have learned that I can ask other people for help, rather than to rely on my own limited ability.  Together, WE can do much more than I could ever do alone. Importantly, I have found creative ways to help other people living with chronic pain and illness. Although I am disabled, I have inherent worth as a human being, and can be an example of positive change. We all help each other. Please become part of my journey by making a contribution, sharing on social media, or sending some positive vibes.



The campaigns are about sharing. Most people have no idea what life is like when you live with MS or what happens after you have a stroke. Isolation is often a bigger problem than the symptoms of the disease itself. With the campaigns we can share and educate people, because it can happen to all of us. When we create a movement where people simply show up for each other, it might get a bit ‘safer’ and less ‘scary’ to engage with each other. Some people share their experiences on their campaign, others share their funds to support the campaigns. It is not about asking for money, it is creating an opportunity for people to learn and show up with #generosity. Being generous resonates with who we are as humans. We understand generosity deeply and when you practice it, you feel so much better 


  • The campaigns are in USD $, the $2200 USD includes the Alinker, shipping, process and campaign fees and our #AlinkerFamily support. 
  • The campaigns are all or nothing, no credit cards are charged unless the campaign reaches its goal.
  • As soon as the campaign reaches its goal, we ship an Alinker (from direct stock or you'll be placed in line, delivery 6-8 weeks).
  • Campaigners do not handle money. On disability or welfare, you cannot handle money without being penalized, but you can receive an Alinker !
  • When the campaign raises more than the goal, the campaigner can chose another campaign where we then make the donation to, paying it forward, or get the balanced paid out, the choice is the campaigner's.
  • If you want to start a campaign and are outside Canada or the USA, write an email to We can potentially get a shipping quote to where you live, and include that in the campaign goal, though we like to keep shipping at a minimum, so we will not ship anywhere beyond $250 shipping costs.

Together we build a movement of kindness and generosity, because we all need it

Why do we facilitate crowdfunding on our site?

We believe that the Alinkers should be available for everybody, regardless of income and people who start a crowdfunding campaign here, will have access to a life changing Alinker. Did you see how happy Selma Blair is using her Alinker? Her anxiety dropped from level 10 to 2 after she got back on her new Alinker. She is so happy and so on with this new invention, that she wants to create a fund to get people access to Alinkers. These crowdfunding campaigns are the first step to make Alinkers available for everybody. Selma Blair and BE are now putting their energy together to build a generous community around all the campaigners! The campaigners are people who allow others to show up generously, give them love!

Here is the Alinker segment as was aired on CBS Innovation Nation October 2019

Why an Alinker?

Generally, medical devices are a technical solution for a body with a problem.
The Alinker is designed for who we are, a whole human being, who wants to live an active and engaged life. We are a human, we have a body. Whether we miss a leg of have MS, it does not change who we are.

Yet the world we live in, treats us as a body with a problem, which creates a social divide between people based on their body, based on what we have, not on who we are. Isolation and loneliness are more devastating than the disease itself. So we need to show up for each other, acknowledge each other and be present to who we are.

These campaigns are here to bridge the gap between a high quality custom Alinker, and the people who live at the receiving end of a 'sickcare' system that drives people into poverty.

So, show up, be radically generous, it is something we humans really understand.
When you read each story in each campaign, pause and imagine who that person is, and why they started the campaign, reach out to them, let them know they are surrounded and seen, heard and not alone. When we do that, we feel better and create a safer community where we know we can show up for each other. It connects us with our essence, we are radically generous creatures, we just got a little lost in systems that are not designed for our wellness.

Alinkers change lives, here are a few people


Who is the Alinker for?

The Alinker is for people who want to stay active, regardless of mobility challenges.

To operate and use the Alinker you must have the ability to:

  • walk to some degree
  • flex and extend your legs
  • bear weight on one leg briefly while getting on and off the Alinker
  • be consciously aware of your surroundings
  • be aware of your ability and limitations

What is the Alinker?

The Alinker is an exceptionally cool, three-wheeled walking bike for humans with mobility constraints. It’s not a medical device, it’s a lifestyle tool, designed to enable users to lead active and socially engaged lives — at eye level.

On the Alinker, users sit upright -- at eye level with standing companions. Weight is supported by the seat with no stress on the lower body, while handle bars provide additional support. Feet remain on the ground, keeping users stable and safe.


Together we'll make this work, in kindness and from the heart


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